Introduction to ERNs and ePAG Patient Advocacy This document provides a comprehensive overview of the European Reference Networks (ERNs) and the vital role of European Patient Advocacy Groups (ePAGs). It...

2026 is already proving to be an intense and energising year, and we’re only just getting started. There’s a lot ahead—from our upcoming webinar series in February to a high-level...

A note from Lisa Happy heart month! It’s hard to believe it’s February already and we are about to begin our campaign of sharing the Faces of HCM all month...

The Pioneering Patient Podcast with Global Heart Hub Global Heart Hub is delighted to partner with The Pioneering Patient Podcast (Sagesse Healthcare Consulting) on a special series sharing Global Heart...

Brigitta Gyebnár, a member of the SZÍVSN board of directors living with an artificial heart, participated in this online conferencehttps://szivsn.hu/a-szivbillentyu-betegseggel-elo-nok-jovojenek-alakitasa/ The Hungarian private clinic Affidea signed a support contract with...

As the year draws to a close, we arrive at a season that, for many, is filled with light, celebration, and moments of joy. It is also a natural pause,...