An exciting AIPM conference organised by Dr.Janka Kocsis was attended by Zsuzsanna Bernáth-Lukács and György Báthori from the board of the national patient association Szívsn Segítünk Neked.
In the morning session, Dr.Dezső Merész spoke about the aspects of the new drug uptake, the price-value ratio. In addition to the EU Presidency and data protection, Dr.Kinga Kelemen prepared a summary on data protection and copyright for the patient groups. Tünde Koltai, head of BEMOSZ, spoke about the participation of international scientific studies also available for Hungarian patients. She talked about the possibility of BEMOSZ applying for the grant, which would be worthwhile for all Hungarian patient organisations. On the one hand, active organisations could present themselves, and on the other hand, how many patient organisations can be expected in 2024?
Great organisation and quality presentations, thank you to Dr.Kinga Kocsis and all the speakers!
Translated with DeepL.com (free version)