December 2020, we held our 250th SZÍVSN event, this year for patients with heart disease and those interested in heart function, disease development and rehabilitation, so far in front of 6000 people in the lecture hall of the Városmajor Cardiovascular Clinic. The main topics are: infarction and its treatment, pacemaker and ICD lifestyle, lifestyle of […]
2020 year assessment Read More »
Information, patient follow-up in cardiology is a key issue in particular – the SZÍVSN national patient association has launched a coordinating tender. While Hungary is at the forefront of cardiology in the world, both in terms of medical preparedness and technological and scientific conditions, our mortality statistics unfortunately show a deplorable picture. Every year, about
With better education, up to tens of thousands of patients could be saved every year! Read More »
In October 2018, the FH Foundation, at its annual Global Summit honored Roger Williams MD to commemorate the twentieth anniversary of publication of the World Health Organization (WHO) Consultation on familial hypercholesterolemia (FH), the most common genetic disorder causing premature atherosclerotic cardiovascular disease, and underscore continued gaps in identification and care. (1) FH, with a
Reducing the Clinical and Public Health Burden of Familial Hypercholesterolemia Read More »
We would like to invite you to participate in the Patient Organisation Advisory Board Meeting concerning Heart Failure (HF) organised by Boehringer Ingelheim RCV GmbH & Co KG, which will be held online due to the current COVID-19 situation. The Advisory Board Meeting is intended to collect insights of members who are living Heart Failure,
Virtual Heart Failure Patient Organization Advisory Board Meeting 19-20.06.2020 Read More »
Moreover, the initiative aims to promote the involvement of patients in the entire life cycle of medicines from the research and development phase through the processes of the healthcare system to long-term pharmacovigilance issuesThe international workshop, held as a first step in the initiative, was attended by around 130 interested professionals from more than 20
Patient Organisation Cooperation – AIPM Leads Pioneering International Initiative Read More »
Hearts in quarantine The situation caused by the coronavirus requires new solutions. We show examples of helpfulness, humanity, and togetherness. Based on the feedback from our patients, in the present situation, the control of the anticoagulant medication and the laboratory examination of the INR value are not solved. An improperly adjusted anticoagulant can cause a
Hearts in quarantine Read More »
1-lipoprotein-apheresis-protocol.docx 2-lomitapide-protocol.docx 3-pcsk9-protocol.docx 4-volanesorsen-protocol.docx Disclaimer to use the protocols.docx Good practices from across Europe for FH patient Organizations in the COVID19 crisis_Updated_14.04.2020.pdf
Good practices from across Europe forfh patient Organisations in the covid – 19 Crisis Read More »
The relevance of this treatment is underlined by the fact that in the recommendations published in 2019 the LDL-cholesterol (LDL-C) goal level in case of very high risk patients has been lowered from 1.8 to 1.4 mmol/l. Aim: The evaluation of the lipid lowering therapy at the time of hospital discharge and the attainment of lipid
We hope this message finds you well. As promised we would like to officially follow up on our FH Europe Network meeting 2019 in Bucharest. Once again a big thank you to the FOBAC team, speakers and sponsors for their help in organizing this incredible event. In attachment you will find the meeting report. We hope
FH Europe Post Annual Network Meeting Report Read More »