Event Topics “Imaging in Hypertrophic Cardiomyopathy” “Medical Therapy in 2026” “Surgical Myectomy and Mitral Valve Repair in Contemporary Care” “Beyond Extended Myectomy – Surgery for Nonobstructive Hypertrophic Cardiomyopathy, Ventricular Aneurysms...

2 March 2026 February has been a month of remembrance, advocacy, and renewed momentum across our community. From international assemblies to local awareness campaigns, this edition highlights the collective action...

Introduction to ERNs and ePAG Patient Advocacy This document provides a comprehensive overview of the European Reference Networks (ERNs) and the vital role of European Patient Advocacy Groups (ePAGs). It...

2026 is already proving to be an intense and energising year, and we’re only just getting started. There’s a lot ahead—from our upcoming webinar series in February to a high-level...

A note from Lisa Happy heart month! It’s hard to believe it’s February already and we are about to begin our campaign of sharing the Faces of HCM all month...

The Pioneering Patient Podcast with Global Heart Hub Global Heart Hub is delighted to partner with The Pioneering Patient Podcast (Sagesse Healthcare Consulting) on a special series sharing Global Heart...

Brigitta Gyebnár, a member of the SZÍVSN board of directors living with an artificial heart, participated in this online conferencehttps://szivsn.hu/a-szivbillentyu-betegseggel-elo-nok-jovojenek-alakitasa/ The Hungarian private clinic Affidea signed a support contract with...

As the year draws to a close, we arrive at a season that, for many, is filled with light, celebration, and moments of joy. It is also a natural pause,...

The energy and unity sparked at our Annual Network Meeting in Croatia are already propelling us into an exceptionally active end of the year. With a full agenda of advocacy...

We are pleased to publish the planned programme for the AIPM’s conference entitled “The Price of Forgetting – Challenges of an Aging Society”. During the event, leading Hungarian experts on...

The new Rare Barometer survey on what helps you live with a rare or undiagnosed condition is now live! We aim to better understand your experience by asking questions on...

Webinar: How can patients engage in heart health research? Join Global Heart Hub for a webinar to introduce our new Clinical Research Initiative, a major step forward in empowering cardiovascular...

  On behalf of FH Europe Foundation, and under the co-hosting of MEP Romana Jerković, Chair of the MEP Cardiovascular Health Group, and MEP Tomislav Sokol, Member of SANT Committee on Public Health, it is...

EU Cardiovascular Health Plan – FH Europe Foundation feedback submitted: now we need your endorsement! We are pleased to share that FH Europe Foundation, in consultation with our Community and Partners,...

A NOTE FROM LISA Dear bighearted friends, I hope you’ve all had a wonderful summer and have been able to enjoy some outdoor activities with friends and family. It has...